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Tanjala Purnell Selected for the OPTN/UNOS Minority Affairs Committee

Tanjala Purnell, PhD, MPH, was recently appointed to a 3-year term as the new Region 2 Representative to the Organ Procurement and Transplantation Network (OPTN) / United Network for Organ Sharing (UNOS) Minority Affairs Committee. The OPTN/UNOS is a public-private partnership that links all professionals involved in the U.S. donation and transplantation system to develop national organ transplantation policy. In this role, she will provide insights from her research findings to inform policy development, research and data analysis, and educational and informational projects to promote equity in access to transplantation in the United States. She will also communicate her committee’s activities to medical professionals, transplant recipients, and donor families in Region 2 (including MD, DE, NJ, PA, WV, and D.C.) and gather input to make certain that members of this region have an opportunity to voice their concerns and opinions.​ Congratulations, Tanjala!​

A Virtual Space for Children with Liver Disease and Their Families

ERGOT’s Douglas Mogul, MD MPH led a team to create the new Facebook application: Liver Space. Mogul wanted to create a community that connected pediatric liver disease patients and their families and provided them with useful information.

“It’s designed to strengthen online communities, serving as a bridge to health care providers and a portal for conducting research,” Mogul told Sarah Richards at Johns Hopkins.

Mogul is currently in talks about creating a similar site for patients with kidney disease.

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